Monday, January 16, 2012

What is a tracheostomy?

"Your child needs a tracheostomy"...That had to be one of the worst things I ever heard and one of the hardest decisions we ever had to make.

All I could think about were those horrible smoking commercials and the lady with a hole in her throat and an artificial voice. Was my baby going to be like this?

I can go on and on and tell you all I know about a tracheostomy but instead I will refer you to a fabulous website called There is no way I could explain about a tracheostomy is better than this website can.

This website will give you all the information you need to know and more, what happens during/after surgery, the care of...even about decannulation.

There is also a message board on this website that you can participate in where I guarantee, you will meet some amazing people.

I just can't say enough about the creator of this website, except that I am thankful to her. Her website truly helped me through some difficult times.

What I can share with you is my own personal journey about a tracheostomy.

It was certainly a difficult decision to have the surgery done for our son, and once we were over the initial shock of the whole thing we could now see that it was truly the best decision.

We were finally able to see his beautiful face (entirely), enjoy his coo's (as only a baby can do) see him smiling! He was able play on his belly, learn to roll over, he could suck on a pacifier and drink from a bottle (sometimes). We had some sense or normalcy, finally.

Most important he no longer needed to be sedated and we could hold him more often. He also started to put on weight and grow. It was the best feeling.

I hope you get to check out and I hope you have as great of an experience as I did.
I have also met some wonderful friends through this website an I pray you can do the same.

For some inspirational stories check out 

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